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COVID-19 Online Virtual Series

These virtual events are held in collaboration with the Stanford Down Syndrome Research Center
RECENT EVENTS
Update: COVID & Down Syndrome Webinar
Webinar Recording
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DSMIG-Chicoine Presentation
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T21RS-Strydom Presentation
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DSMIG Vaccination Position Statement and T21RS COVID & DS Survey

PAST EVENTS
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​COVID-19 Virtual Series: Update COVID & Down Syndrome; DSMIG-USA Vaccination Position Statement and Trisomy 21 Research Society COVID & Down Syndrome Survey
January 8, 2021
Brian Chicoine,  Medical Director, Advocate Medical Group Adult Down Syndrome Center and DSMIG-USA Board Member
Andre Strydom, Professor of Intellectual Disabilities, King's College London and President, Trisomy 21 Research Society
Links to: DSMIG Vaccination Position Statement and T21RS COVID & DS Survey
DSMIG-Chicoine presentation (pdf) I T21RS-Strydom presentation (pdf) I recording (coming)
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​COVID-19 Virtual Series: Navigating Return to School Decisions (Panel Discussion)
August 4, 2020
Sue Swenson, former Dep Asst Secretary, Office of Special Ed & Rehabilitative Services, US Dept of Ed, Pres, Inclusion Intl
Dan Schwartz, I. James Quillen Dean, Graduate School of Education, Stanford University
Bonnie Maldonado, Sr Assoc Dean, Professor, Pediatric Infectious Diseases, Medical Dir, Infection Control, LPCH Stanford
Kishore Vellody, Medical Dir, Down Syndrome Center of Western PA, Professor, Pediatrics, Children's Hospital of Pittsburgh

Lawrence Fung, Director, Stanford Neurodiversity Project, Asst Professor, Psychiatry, Stanford University
Recording (zoom)
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​​COVID-19 Virtual Series: Mental Wellness in people w/Down syndrome and I/DD during COVID-19
May 30, 2020
Dennis McGuire,  Consultant, Global Down Syndrome Foundation and international expert in Mental Wellness in the Down syndrome population
Allan Reiss, Howard C. Robbins Professor of Psychiatry, Radiology, and Pediations, Stanford University School of Medicine
McGuire presentation (pdf) I Reiss presentation (pdf) I recording (zoom)
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​​COVID-19 Virtual Series: COVID-19's Impact on Services and Policy for the Down syndrome and I/DD Community
May 21, 2020
Nicole Jorwic, Senior Director, Public Policy, The Arc of the United States
Jordan Lindsey, Executive Director, The Arc California
Jorwic presentation (pdf) I Lindsey presentation (pdf​) I recording (vimeo)
We are at risk of losing up to 14% in funding. Please tell Congress #WeAreEssential and to include the disability community in #COVID-19 Relief Bills. It only takes ONE CLICK for California or all States.
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​​COVID-19 Virtual Series: Virtual Teaching Strategies & Techniques for Teachers and Parents of Students with Intellectual and Developmental Disabilities
April 30, 2020
Rhonda Faragher, Deputy Head, School of Education, The University of Queensland, Australia

Presentation (pdf) I recording (mp4)
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COVID-19 Virtual Series: Managing School at Home
April 17, 2020
Chris Lemons, Assoc. Professor, Stanford Graduate School of Education
Denise Pope, Senior Lecturer, Stanford Graduate School of Education & Co-Founder, Challenge Success
Lemons presentation (pdf) I recording (youtube)
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​COVID-19 Virtual Series: Medical Overview
April 17, 2020
Brian Chicoine, Medical Director, Advocate Medical Group Adult Down Syndrome Center
Noemi Spinazzi, Medical Director, UCSF Benioff Children's Hospital Down Syndrome Clinic/Charlie's Clinic
Chicoine presentation (pdf) I Spinazzi presentation (pdf) I recording (mp4)

Information & Resources

consortium of down syndrome organizations


Updated "Q & A on COVID-19 & Down Syndrome"
 

English
Expanded Version 

Short Version

Spanish

Expanded Version 
Short Version

​DSMIG-USA, Global DS Foundation, LuMind IDSC Foundation, NDSC, NDSS, NTG on Intellectual Disabilities and Dementia Practice

nATIONAL iNSTITUTES OF hEALTH (nih) - usa


Latest Coronavirus Research information: Click  HERE
​DS CONNECT: Click HERE

cENTERS FOR dISEASE cONTROL AND pREVENTION (cdc) - usa


Latest Coronavirus Public Health Information: Click HERE

The Arc


COVID Legislation Fact Sheets: Click HERE

UPMC CHildren's hospital of pittsburgh


"Myths and Truths"
Click here for podcast
​Andrew Nowalk, MD, PhD
Children's Hospital of Pittsburgh


"Right to Equal Medical Treatment for People with DS" 
Click here for podcast
Heather Sachs, JD
National Down Syndrome Congress


"Navigating Towards an Eventual Safe Return"
Click here for podcast
​Andrew Nowalk, MD, PhD
Children's Hospital of Pittsburgh


Stanford Graduate School of Education


"COVID-19: Teachers, Families and the Future"

Click here for link to Stanford GSE resources
Please note there is a wealth of information but it is not Down syndrome specific

Age: Preschool to age 8, Elementary, and Middle & High School
Type: Families or Teachers or Both


Examples include:
"How to work and teach - at the same time"
"How to talk with kids about COVID-19"
"Upgrading lessons for kids at home during coronavirus school closures"

"Resources for remote learning"
and more
TRISOMY 21 RESEARCH SOCIETY

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NATIONAL DOWN SYNDROME CONGRESS


Medical, Online Learning, Support Services, Explanations & Finance, Advocacy & Action, and Family Fun Activities

Ucsf benioff down syndrome clinic - charlie's clinic


"Down syndrome and Coronavirus"

Click below for:

UCSF Benioff Down Syndrome Clinic COVID-19 and Down Syndrome webpage

"Health and Down syndrome w/Dr. Noemi Spinazzi" - the lucky few podcast 


Noemi Spinazzi
Medical Director, Down Syndrome Clinic
UCSF Benioff Children's Hospital

self-advocacy resource and technical assistance center (sartac)


"Plain Language Information on COVID-19"
(in 11 Languages)


Click here to view document
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Contributors and supporters include Vermont Developmental Disabilities Council, Administration on Intellectual and Developmental Disabilities, Admnistration for Community Living, U.S. Department of Health and Human Services, and others.
IRIS 21 RESEARCH SOCIETY

Parents: Supporting Learning During the COVID-19 Pandemic
The IRIS Center offers resources about evidence-based instructional and behavioral practices to support the education of all students, particularly struggling learners and those with disabilities. The IRIS Center is supported by the US Dept of Education's Office of Special Education. This link provides practical tools and easy-to-implement strategies to help:
  • Clarify what is and (perhaps just as importantly) what is not a parent’s role during school shutdowns
  • Prepare for at-home learning
  • Support your child’s learning
  • Promote your child’s social and emotional wellbeing
  • Support your child if he or she is struggling or has a disability
  • Keeping up with what a child is expected to learn
  • Creating and sharing learning spaces in what are often crowded living environments
  • Reducing distractions and other obstacles to learning​

massachusetts general hospital down syndrome program


"COVID-19:  e-Learning & Down syndrome"
Click here to read
Sam Johnson, EdD
​Director, Postsecondary & Workforce Dev, CAST
"COVID-19: Speech Therapy at Home"
​Click for: Toddler/Pre-school and School-Age
Diana Brenner-Miller, MS, CCC-SLP
Pediatric Speech-Language Pathologist
MassGeneral for Children
"Safe re-entry for people w/DS back into communities"​
​Click here for document
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AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE AND DENTISTRY (AADMD)

Coronavirus Center

COVID-19 RESEARCH STUDies

Trisomy 21 Research Society & Emory University

Are people with Down syndrome more vulnerable to COVID-19? Do people with Down syndrome have a different course of illness related to COVID-19? Is their illness is related to their pre-existing health profile.

If the person you care for has Down syndrome AND has tested positive or has symptoms of COVID-19. Please consider THIS survey conducted by Trisomy 21 Research Society & Emory University


Click HERE for more info and to link to the study
International Consortium
Principal investigators - University  College London, Univ. of Fribourg (Switzerland), Swiss Distance University Institute
Collaborator - many including Prof. Antonio Hardan, Stanford University


How Families with Children with Special Needs are coping with the COVID-19 Pandemic? How is the coronavirus pandemic affecting people with special needs and their families?

Click ​HERE for more info and to link to the study

OTHER RESEARCH STUDIES you can participate in

University of Pittburgh - Obesity Prevention

Do you have a child with Down syndrome aged 12-36 months? Is your child walking independently? Are you willing to participate in an interview and data collection from your home?


Click HERE for a flyer about the study

Click HERE to submit your name to learn more about the study
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Improving the quality of life for persons with Down syndrome and developmental disabilities over their entire lifespan
The Matthew Foundation Inc. is recognized as a 501 (c) 3, tax exempt charity by the IRS.
Federal ID #: 46-5659242
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