related links
There are many initiatives that support the Down syndrome community. We cannot list them all but below are a handful that we are involved in and you may find helpful or of interest to you.
DS-Connect®: The Down Syndrome Registry
National Institutes of Health (NIH) asked the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) to lead the formation of the Down Syndrome Consortium to foster communication and idea-sharing among NIH, individuals with Down syndrome and their families, national organizations interested in Down syndrome, and pediatric and other groups. One of its first activities was to create a Down syndrome registry, now called DS-Connect®: The Down Syndrome Registry. “The new registry provides an important resource to individuals with Down syndrome and their families,” said Yvonne T. Maddox, former deputy director of the NIH’s Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), which is funding the registry. The national and international DS organizations agree this registry is important to further research and improve care for families. Please consider joining! For more information: https://dsconnect.nih.gov/.
National Institutes of Health (NIH) asked the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) to lead the formation of the Down Syndrome Consortium to foster communication and idea-sharing among NIH, individuals with Down syndrome and their families, national organizations interested in Down syndrome, and pediatric and other groups. One of its first activities was to create a Down syndrome registry, now called DS-Connect®: The Down Syndrome Registry. “The new registry provides an important resource to individuals with Down syndrome and their families,” said Yvonne T. Maddox, former deputy director of the NIH’s Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), which is funding the registry. The national and international DS organizations agree this registry is important to further research and improve care for families. Please consider joining! For more information: https://dsconnect.nih.gov/.
World Down Syndrome Day Conference at the United Nations
The World Down Syndrome Day Conference at the United Nations is an international conference held at the UN Headquarters in New York which broadly aims to advance the human rights of persons with Down syndrome and disabilities utilizing the UN Convention on the Rights of Persons with Disabilities (UN CRPD) and other human rights instruments. It is sponsored each year by Permanent Missions of UN Member States and international agencies and NGOs.
For more information about the WDSD Conf @ UN: https://www.ds-int.org/wdsd-conference.
For more information about the United Nation's commitment to Down syndrome initiatives: https://www.worlddownsyndromeday.org/united-nations-resolution-world-down-syndrome-day
The World Down Syndrome Day Conference at the United Nations is an international conference held at the UN Headquarters in New York which broadly aims to advance the human rights of persons with Down syndrome and disabilities utilizing the UN Convention on the Rights of Persons with Disabilities (UN CRPD) and other human rights instruments. It is sponsored each year by Permanent Missions of UN Member States and international agencies and NGOs.
For more information about the WDSD Conf @ UN: https://www.ds-int.org/wdsd-conference.
For more information about the United Nation's commitment to Down syndrome initiatives: https://www.worlddownsyndromeday.org/united-nations-resolution-world-down-syndrome-day
Down syndrome Organizations
Down Syndrome International - Down Syndrome International (DSi) is the largest, global, member organization dedicated to Down syndrome initiatives in the world. With members from over 100 countries, this UK based charity is improving quality of life for people with Down syndrome worldwide and promoting their inherent right to be accepted and included as valued and equal members of their communities. For more information: www.ds-int.org.
Jerome Lejeune Foundation USA - http://lejeuneusa.org.
National Down Syndrome Society - www.ndss.org
National Down Syndrome Congress - www.ndsccenter.org
LuMind RDS Foundation - www.lumindfoundation.org
ACDS - www.acds.org
Jerome Lejeune Foundation USA - http://lejeuneusa.org.
National Down Syndrome Society - www.ndss.org
National Down Syndrome Congress - www.ndsccenter.org
LuMind RDS Foundation - www.lumindfoundation.org
ACDS - www.acds.org
