Webinars and covid-19 resources
RECENT WEBINARS
These virtual events are held in collaboration with the Stanford Down Syndrome Research Center
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Recording
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Presentation
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PAST EVENTS
Update: COVID & Down Syndrome Webinar
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Webinar Recording
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DSMIG-Chicoine Presentation
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T21RS-Strydom Presentation
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COVID-19 Virtual Series: Update COVID & Down Syndrome; DSMIG-USA Vaccination Position Statement and Trisomy 21 Research Society COVID & Down Syndrome Survey
January 8, 2021 Brian Chicoine, Medical Director, Advocate Medical Group Adult Down Syndrome Center and DSMIG-USA Board Member Andre Strydom, Professor of Intellectual Disabilities, King's College London and President, Trisomy 21 Research Society Links to: DSMIG Vaccination Position Statement and T21RS COVID & DS Survey DSMIG-Chicoine presentation (pdf) I T21RS-Strydom presentation (pdf) I recording (coming) |
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COVID-19 Virtual Series: Navigating Return to School Decisions (Panel Discussion)
August 4, 2020 Sue Swenson, former Dep Asst Secretary, Office of Special Ed & Rehabilitative Services, US Dept of Ed, Pres, Inclusion Intl Dan Schwartz, I. James Quillen Dean, Graduate School of Education, Stanford University Bonnie Maldonado, Sr Assoc Dean, Professor, Pediatric Infectious Diseases, Medical Dir, Infection Control, LPCH Stanford Kishore Vellody, Medical Dir, Down Syndrome Center of Western PA, Professor, Pediatrics, Children's Hospital of Pittsburgh Lawrence Fung, Director, Stanford Neurodiversity Project, Asst Professor, Psychiatry, Stanford University Recording (zoom) |
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COVID-19 Virtual Series: Mental Wellness in people w/Down syndrome and I/DD during COVID-19
May 30, 2020 Dennis McGuire, Consultant, Global Down Syndrome Foundation and international expert in Mental Wellness in the Down syndrome population Allan Reiss, Howard C. Robbins Professor of Psychiatry, Radiology, and Pediations, Stanford University School of Medicine McGuire presentation (pdf) I Reiss presentation (pdf) I recording (zoom) |
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COVID-19 Virtual Series: COVID-19's Impact on Services and Policy for the Down syndrome and I/DD Community
May 21, 2020 Nicole Jorwic, Senior Director, Public Policy, The Arc of the United States Jordan Lindsey, Executive Director, The Arc California Jorwic presentation (pdf) I Lindsey presentation (pdf) I recording (vimeo) |
We are at risk of losing up to 14% in funding. Please tell Congress #WeAreEssential and to include the disability community in #COVID-19 Relief Bills. It only takes ONE CLICK for California or all States.
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COVID-19 Virtual Series: Medical Overview
April 17, 2020 Brian Chicoine, Medical Director, Advocate Medical Group Adult Down Syndrome Center Noemi Spinazzi, Medical Director, UCSF Benioff Children's Hospital Down Syndrome Clinic/Charlie's Clinic Chicoine presentation (pdf) I Spinazzi presentation (pdf) I recording (mp4) |
consortium of down syndrome organizationsCOVID-19 & Down Syndrome Resources
Updated: March 2, 2021 English Spanish DSMIG-USA, Global DS Foundation, LuMind IDSC Foundation, NDSC, NDSS, NTG on Intellectual Disabilities and Dementia Practice dOWN SYNDROME MEDICAL INTEREST GROUP-USACOVID-19 Position Statement (May 2021),
11/21 statement coming soon Response to CDC Mask Mandate (May 2021) NATIONAL DOWN SYNDROME CONGRESS
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trisomy 21 research societynATIONAL iNSTITUTES OF hEALTH (nih) - usacENTERS FOR dISEASE cONTROL AND pREVENTION (cdc) - usaLatest Coronavirus Public Health Information: Click HERE
The ArcCOVID Legislation Fact Sheets: Click HERE
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UPMC CHildren's hospital of pittsburgh"Vaccine for Younger Children & Boosters for Adults"
Click here for podcast Andrew Nowalk, MD, PhD Children's Hospital of Pittsburgh "Myths and Truths" Click here for podcast Andrew Nowalk, MD, PhD Children's Hospital of Pittsburgh "Right to Equal Medical Treatment for People with DS" Click here for podcast Heather Sachs, JD National Down Syndrome Congress "Navigating Towards an Eventual Safe Return" Click here for podcast Andrew Nowalk, MD, PhD Children's Hospital of Pittsburgh |
Stanford Graduate School of Education"COVID-19: Teachers, Families and the Future"
Click here for link to Stanford GSE resources Please note there is a wealth of information but it is not Down syndrome specific Age: Preschool to age 8, Elementary, and Middle & High School Type: Families or Teachers or Both Examples include: "How to work and teach - at the same time" "How to talk with kids about COVID-19" "Upgrading lessons for kids at home during coronavirus school closures" "Resources for remote learning" and more |
Ucsf benioff down syndrome clinic - charlie's clinic"Down syndrome and Coronavirus"
Click below for: UCSF Benioff Down Syndrome Clinic COVID-19 and Down Syndrome webpage "Health and Down syndrome w/Dr. Noemi Spinazzi" - the lucky few podcast Noemi Spinazzi Medical Director, Down Syndrome Clinic UCSF Benioff Children's Hospital |
self-advocacy resource and technical assistance center (sartac)"Plain Language Information on COVID-19"
(in 11 Languages) Click here to view document Contributors and supporters include Vermont Developmental Disabilities Council, Administration on Intellectual and Developmental Disabilities, Admnistration for Community Living, U.S. Department of Health and Human Services, and others. |
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IRIS 21 RESEARCH SOCIETY
The IRIS Center offers resources about evidence-based instructional and behavioral practices to support the education of all students, particularly struggling learners and those with disabilities. The IRIS Center is supported by the US Dept of Education's Office of Special Education. This link provides practical tools and easy-to-implement strategies to help:
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massachusetts general hospital down syndrome programUpdated Fact Sheet (including "Can my loved one with Down syndrome get a third COVID-10 vaccine?"
Click here to read "COVID-19: e-Learning & Down syndrome"
Click here to read Sam Johnson, EdD Director, Postsecondary & Workforce Dev, CAST "COVID-19: Speech Therapy at Home"
Click for: Toddler/Pre-school and School-Age Diana Brenner-Miller, MS, CCC-SLP Pediatric Speech-Language Pathologist MassGeneral for Children AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE AND DENTISTRY (AADMD)
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COVID-19 RESEARCH STUDies
Trisomy 21 Research Society & Emory University
Are people with Down syndrome more vulnerable to COVID-19? Do people with Down syndrome have a different course of illness related to COVID-19? Is their illness is related to their pre-existing health profile.
If the person you care for has Down syndrome AND has tested positive or has symptoms of COVID-19. Please consider THIS survey conducted by Trisomy 21 Research Society & Emory University
Click HERE for more info and to link to the study
Are people with Down syndrome more vulnerable to COVID-19? Do people with Down syndrome have a different course of illness related to COVID-19? Is their illness is related to their pre-existing health profile.
If the person you care for has Down syndrome AND has tested positive or has symptoms of COVID-19. Please consider THIS survey conducted by Trisomy 21 Research Society & Emory University
Click HERE for more info and to link to the study
International Consortium
Principal investigators - University College London, Univ. of Fribourg (Switzerland), Swiss Distance University Institute
Collaborator - many including Prof. Antonio Hardan, Stanford University
How Families with Children with Special Needs are coping with the COVID-19 Pandemic? How is the coronavirus pandemic affecting people with special needs and their families?
Click HERE for more info and to link to the study
Principal investigators - University College London, Univ. of Fribourg (Switzerland), Swiss Distance University Institute
Collaborator - many including Prof. Antonio Hardan, Stanford University
How Families with Children with Special Needs are coping with the COVID-19 Pandemic? How is the coronavirus pandemic affecting people with special needs and their families?
Click HERE for more info and to link to the study
OTHER RESEARCH STUDIES you can participate in
University of Pittburgh - Obesity Prevention
Do you have a child with Down syndrome aged 12-36 months? Is your child walking independently? Are you willing to participate in an interview and data collection from your home?
Click HERE for a flyer about the study
Click HERE to submit your name to learn more about the study
Do you have a child with Down syndrome aged 12-36 months? Is your child walking independently? Are you willing to participate in an interview and data collection from your home?
Click HERE for a flyer about the study
Click HERE to submit your name to learn more about the study
